Can't catch up ... no decorations .. only five cards sent ...
CLOSE OUT THE YEAR ???? HA ... never happen! Why does everyone get sick at the same time ....
I'm dancing as fast as I can............................. hurry, someone throw out that dance card!
Friday, December 17, 2010
Saturday, December 11, 2010
Friday, December 10, 2010
HLA , Genetics and GUILT
WOW oh Wow oh wow oh wow............. I have been studying (or trying to) the possible Genetic link to diabetes. I truly DON'T understand half of what I read ... but I'm a Pit-Bull when it comes to Care Giving, and, as my husband has been having serious health problems since age 47, I have schlepped him from one Specialist to another and picked up more books than the Public Library!
So, Grandpa Bill is HLA Positive ... some B-27 gene effected causing him to have a cavalcade of disorders ... the most recent is Lupus Anti-Coagulating Disorder (??) which is NOT Lupus but it causes Deep Vein Thrombosis (DVT's) which are a REAL BUMMER!
Being HLA Pos, he has a 50/50 change of passing the Gene to Amy ... and Amy has a 50/50 chance of passing to her issues and so on and so forth ... NOW, if I understand the explanation, if there is an extra allele present, it's almost an 90% chance of developing diabetes!
Bill and I were discussing it ... and of course, he feels terrible that he may have passed on this gene ... it also makes me wonder, as the "Family Cemetery Plot" in Ludington , Michigan, has a whole section MARKED "Children and Babies" ... can you believe it? No names ... just a head stone marked ...so sad!
I guess NOTHING is going to change the diagnoses ..but, it helps to understand why or MAYBE why...and definitely an advantage when a CURE for certain types of diabetes is isolated. The "fanatic" in me wants to have ALL the G-kids tested for this Genetic Link .... but to what end? Just more to worry about I guess ... so, I'm not even going to approach the issue. The Family, with the exception of me, wants to pretend that the G-Child is no different from anyone else. I believe this is a mistake ... but I, too, don't want her to grow up thinking she's a victim .... but she NEEDS to know that her very life hangs in the balance of keeping her BG in order (something that she doesn't understand at this point and doesn't care about). Like so many blogs I follow, her numbers have been all over the board in the past two weeks ...and no one has wanted to deal with it ... even ME! I'm just not up to the "fight" it might cause .... the ONLY good thing about the past 14 days is FINALLY ...Amy is LOGGING food and insulin and BG #'s !!!! You have NO idea how it helps to trend the BG when you write down everything consumed and all the injections and times given ..... let's hope she maintains this journal I made for her 8 months ago! (I've been trying to journal over the phone, but its hit and miss at best!)
I got Amy a very COOL diabetic scale that gives a complete Nutritional Label for over 1000 different food items ... its so cool, I just know (and pray) she'll use it! and it remembers up to 100 entries! (Heidi D-Tales, Thank you for the wonderful idea!)
OFF to Tennis!! just write LOSER across my forehead! boohoo!!
So, Grandpa Bill is HLA Positive ... some B-27 gene effected causing him to have a cavalcade of disorders ... the most recent is Lupus Anti-Coagulating Disorder (??) which is NOT Lupus but it causes Deep Vein Thrombosis (DVT's) which are a REAL BUMMER!
Being HLA Pos, he has a 50/50 change of passing the Gene to Amy ... and Amy has a 50/50 chance of passing to her issues and so on and so forth ... NOW, if I understand the explanation, if there is an extra allele present, it's almost an 90% chance of developing diabetes!
Bill and I were discussing it ... and of course, he feels terrible that he may have passed on this gene ... it also makes me wonder, as the "Family Cemetery Plot" in Ludington , Michigan, has a whole section MARKED "Children and Babies" ... can you believe it? No names ... just a head stone marked ...so sad!
I guess NOTHING is going to change the diagnoses ..but, it helps to understand why or MAYBE why...and definitely an advantage when a CURE for certain types of diabetes is isolated. The "fanatic" in me wants to have ALL the G-kids tested for this Genetic Link .... but to what end? Just more to worry about I guess ... so, I'm not even going to approach the issue. The Family, with the exception of me, wants to pretend that the G-Child is no different from anyone else. I believe this is a mistake ... but I, too, don't want her to grow up thinking she's a victim .... but she NEEDS to know that her very life hangs in the balance of keeping her BG in order (something that she doesn't understand at this point and doesn't care about). Like so many blogs I follow, her numbers have been all over the board in the past two weeks ...and no one has wanted to deal with it ... even ME! I'm just not up to the "fight" it might cause .... the ONLY good thing about the past 14 days is FINALLY ...Amy is LOGGING food and insulin and BG #'s !!!! You have NO idea how it helps to trend the BG when you write down everything consumed and all the injections and times given ..... let's hope she maintains this journal I made for her 8 months ago! (I've been trying to journal over the phone, but its hit and miss at best!)
I got Amy a very COOL diabetic scale that gives a complete Nutritional Label for over 1000 different food items ... its so cool, I just know (and pray) she'll use it! and it remembers up to 100 entries! (Heidi D-Tales, Thank you for the wonderful idea!)
OFF to Tennis!! just write LOSER across my forehead! boohoo!!
Wednesday, December 8, 2010
FANATIC
That would be me ... the whole Family thinks I'm a crazed, diabetic NUT-JOB.....
SO SAD .... TOO BAD ...
No one wants to pull their head(s) out of the sand and see what is going to happen to our D-Darling if someone doesn't start taking this serious!
I ONLY wanted to take her to the LomaLinda Children's Diabetic Clinic for a fun outing with other kids! Kids who PUMP ... kids who don't pump ... fun learning activities and LESSONS for little ones on logging and making their OWN DAILY routine(s) FUN FUN FUN .... and also to see that its NOT SO TRAGIC! Other 7 year olds give them self shots ... no big deal ... its an awareness issue and a definite confidence booster!
More later ...after TENNIS ... hope I win!
I LOST POOH
SO SAD .... TOO BAD ...
No one wants to pull their head(s) out of the sand and see what is going to happen to our D-Darling if someone doesn't start taking this serious!
I ONLY wanted to take her to the LomaLinda Children's Diabetic Clinic for a fun outing with other kids! Kids who PUMP ... kids who don't pump ... fun learning activities and LESSONS for little ones on logging and making their OWN DAILY routine(s) FUN FUN FUN .... and also to see that its NOT SO TRAGIC! Other 7 year olds give them self shots ... no big deal ... its an awareness issue and a definite confidence booster!
More later ...after TENNIS ... hope I win!
I LOST POOH
Friday, December 3, 2010
Someone please advise
OK ... so the D-child is HERE and both sets of G-Parents are in charge of her care ... (not my idea) .... BUT PLEASE HELP ME ....
Problem ... other D-G'ma has her for next five days and when I asked how her numbers were, she smiled and told me JUST PERFECT ... Wow, I was impressed!! After a bit more conversation she told me her secret for keeping numbers in range ... SHE IS ONLY FEEDING HER SIRLOIN PATTIES ...THAT'S IT! BREAKFAST LUNCH & DINNER.... She thought it was smart to just not give her carbs...
I know this is not the way!! OMG OMG ... I don't want to cause a Family Feud .. my hubby said to keep my nose out of it ...but, once again, I haven't been able to sleep from the worry of five straight days of protein only ... Please pray for our little Ashlee!
Problem ... other D-G'ma has her for next five days and when I asked how her numbers were, she smiled and told me JUST PERFECT ... Wow, I was impressed!! After a bit more conversation she told me her secret for keeping numbers in range ... SHE IS ONLY FEEDING HER SIRLOIN PATTIES ...THAT'S IT! BREAKFAST LUNCH & DINNER.... She thought it was smart to just not give her carbs...
I know this is not the way!! OMG OMG ... I don't want to cause a Family Feud .. my hubby said to keep my nose out of it ...but, once again, I haven't been able to sleep from the worry of five straight days of protein only ... Please pray for our little Ashlee!
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