A1C UPDATED

I am so happy to report that Ashlee's A1C was 8.5 ... never thought I'd be happy with 8.5 but after the 10.5 in July this is a huge improvement! My Mom's was 6.5 ...good for her ... she has finally learned not to cheat! Wish I COULD!

HR is STILL so much of my daily (and nightly) thoughts ...it's crazy! Little Romeo has slipped into total separation anxiety melt-down mode! I can't go to the mailbox without him crying ... I thought he was completely over that stage of his life .. but either my energy ABOUT H or he misses his bully-buddy, H, OR he really thinks he's alone now ...I don't know what ??? but we'll figure it out!

I have actually been thinking of calling the Breeder who Lisa and Michael got HR from. (SHHHH...don't tell Bill!) It goes against everything I believe should be done for all the HOMELESS dogs in the shelter ! I just miss H so much ...I want a part of him back, even if it's a distant cousin! Don't worry I just WON'T buy from a breeder ...but I can think about it!

11-23-2011 ...this has been sitting in a "draft" file for over a month ... now I can't remember what I was going to add...

and Now she's EIGHT

Ashlee & Cameron July2011

Happy Birthday to our darling D-Girl! Today she is EIGHT ...where do the years go? I remember the day she was born! Mom missed a trip to Disneyworld that summer ...can't fly when you're 8 months PG !! ☺

One and 1/2 years post DX of Type 1 ... another life changing moment! But it's Ashlee's Birthday today ... and D will not creep in ..period, nada, zilch ... ZIP-No D!

My darling Ashlee !!!

PALM SPRINGS!

To the Arkansas Gang ...this is HOT weather!

To us old Desert Rats...
we're freezing!

The kids went to the park to play this afternoon (PS is NOT known for its "kid friendly" features! )

PALM SPRINGS: HOME OF THE NEWLY WEDS BUT MOSTLY NEARLY DEADS!

Wednesday 11-3-2010

Wake-up 9:00a.............192

12:30p............................302

2:20p...............................66

3:15p...............................132

5:20p...............................268

8:30p...............................238

no correction at Bedtime...just 3 u of Levimir

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thursday 11-04-2010

Wake-up..............291

9 u Levimir & 2u Humalog

**IMO should have received correction @

bedtime 11-3-2010

but I'm not the Mom!
PS: Ashlee has been fighting some "bug" past day or so
and we all know how that can effect the BG!
Did I say I HATE diabetes?

Chasing numbers ...hmmmmmmmmmmmmm

November 1st

Wake-up ........ 172
10:15a ....... 146
1:45p ........ 55
5:30p ...... 206
8:05p ....... 101
10:00p ....... 104

11-2-2010

Wake-up ........ 163
12:00p ........... 60
12:45p ........... 127
3:45p ............. 230
5:15p ............. 242
6:00p ............ 144
7:30p ............. * 77

* Not a good "bedtime" #

~~~~~~~~~~~~~~~~~~~
No Intake or bolus information

Morning receives 9 u Levimir

Bedtime receives 3 u Levimir

Ashlee uses the Insulin pens
Her regular is Humalog

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The Myrnx has given up on the Pump altogether! Her Endo (we saw yesterday) said some older T1's just aren't able to deal with technology

I forgot!

Adele ... forgive me ...I forgot to "RABBIT RABBIT RABBIT" on October 1st! Oh pooh! What can I say ????

The pump my Mom started on first part of August has been "fired" by my Mom! (I call her The Myrnx) ... So distressing to me, her numbers were so good (with the pump) I truly believe it would have added years to her life, QUALITY YEARS ... full of fun and being able to scooty-poop around again and do all the fun things we used to love to do! Yard Sales, apple picking in Apple Valley, trips to SeaWorld and the Zoo and so MANY MANY things we did on a regular basis UNTIL the "EVIL D" decided to give The Myrnx "Takotsubo Cardiomyopathy" !!!

I am taking her into the Endo again tomorrow to DISCUSS all of the ramifications of going back to insulin shots. (He only put her on the pump because after 25 plus years of dealing with her T1, she has NEVER been able to really maintain any continuity with the numbers.) The Myrnx is truly a diabetic paradox! Oh well ... I'm so tired out I can't think straight anymore. It is so very very depressing ... AND to top off the whole thing ... The Myrnx's Endo thinks I am her OLDER SISTER every time I meet with him .... that's how much the Evil-D has aged me in the past 7 months ... since Ashlee, the 6-year-old granddaughter was diagnosed with T1 also! I don't care, I've earned these wrinkles and, if it really starts bothering me, I am fortunate to live in the Plastic Surgery Mecca of the West Coast! HA HA HA ... Dr.90210, do you give a AAA discount?

I'm going to bed!

what to do...what to do ? ? ?

The kids were here from Arkansas for Ryan and Heidei's wedding! Always a treat to get to be with them all. Ashlee (T1 grandchild) is such a treasure and although I shouldn't have favorites, she certainly is the one MOST on my mind, heart and prayers!

I know (from my Mom's T1) that any kind of stress or change can effect the BG, so I shouldn't be concerned with Ashlee's numbers ...BUT I AM! Maybe its "growth spurt" or the trip stress, but that's child's' #'s were all OVER the board. She really could benefit from the pump, but her Endo won't consider Rx'ing it without documented brittle readings. Amy, bless her heart, doesn't log or measure anything. (I'd be crazy with out the numbers in front of me.) She doesn't remember when or if she's given a correction or what Ashlee ate, etc. etc. etc. SHE is just to busy with everything else, so what to do??? She'll never get a pump without logs for Endo to review ... they are coming back next month for a business trip, we'll have them 14 days. I am praying that Ashlee will come with us. I know Amy may change her thinking if we can show an improvement in Ashlee's numbers ... PRAY FOR ME ...

Disability / SS Benefits ??

My question ... to anyone who may read this bog .... does a child with a dx of Type 1 qualify for Social Security / Disability Benefits ?? I READ the publication from SS.gov and it clearly defines Diabetes as a recognized disability HOWEVER Ashlee's application was denied and SS Admin recommended the kids' use a Disability Attorney (even gave them a list of names in their area) to do an appeal.

The reason for the application is not for the added income (that would be nice however), it is for the MEDICARE BENEFITS after the two year waiting period. Their current plan SHOULDN'T be able to cancel or increase premiums .. but YOU KNOW FOR A FACT they WILL !! Additionally, as Ashlee becomes an adult and isn't qualified under Mom and Dad's ... she will basically be uninsurable ... so I want the kids to work on this NOW ... before it even becomes an issue!





It makes me anger the the "Octo-Mom" here in Cali has two or three children on Disability Income (with Medicare/Medical benefits) with a diagnosis of ADD !!!!!(These facts are Public Record!) Hyperactivity is a poor excuse for Disability if you ask me! I've seen 4 out of 5 children corrected of ADD symptoms with diet modification and discipline training! But the "Octo-Mom" is another post! Its really none of my business ... it just makes me upset that my tax dollars are paying for her plastic surgeries, medical benefits and fertility doctors !! No wonder California is in such a $$$ mess!

Ashlee and the "D" word

As most of you already know... our little granddaughter, Ashlee, was diagnosed a few months ago with Type 1 diabetes. Cool! The Myrnx, my Mom, has been an adult onset Type 1 for about 20 years now so I thought I was REAL SMART about all things Type 1.
WRONG WRONG WRONG , I am just a BIG DUMMY !! After doing research and reading some D-Mom Blogs out there, I really started to get frightened by everything! My mom, little Ashlee ...everybody! How could I have had my head buried in the sand for so many years??

Bottom line ... I'm doing the "CliffsNotes" study-up ON CURRENT diabetes issues (yes, things change alot in 20 years)and will be up to speed in no time at all. I feel guilty about it taking Ashlee's dx to make me aware that I know so little! My mom could have used my help thru the past 20 years! No looking back ... just forward! I'm determined to get these two specials "girls" healthy!

PRAY FOR ME!