I haven't updated this blog for some time now .... however, I still check the blogs I follow (all the Darling D-Moms and such) whenever I get a chance.
Diabetes is depressing! I get alot of chuckles from some of your antics ... up's and down's, HIGH's and LOW's! Lord, I pray daily for the comic relief I get from some of you girls! I cry alot, too. NOT an hour of my day (and sometimes in my sleep) DIABETES creeps in. I want it to be over... cured... no more! I want a cure for my Darling little 7 year old Ashlee ... and for my Mom and for ALL the T1's young, old and every age in-between!
We rescued a cat ... and several months into our "ownership" (if anyone ever really owns a cat), Baby Leeza, short for Condoleeza, became constipated (I thought) ... after a week of lethargy I took her to the Vet. She had DIABETES! It pains me to say she had to be put to sleep ... she was unable to deal with the shots and would hide from us to avoid the needle ... and the illness took over. Then, when our little G-daughter was diagnosed, my mind kept creeping back to poor Condoleeza Kitty .... if a CAT can't deal with daily injections and wants to run-a-way from home to avoid them ... what is going through a six-year-olds mind??? Ashlee, too, HATES the pokes from testing and shots. Will she, one day, run away from it all? Will she give up on her diabetes? Will she be able to live a normal life, grow up and have children? My brain is in hyper-drive today ...with diabetes shifting my gears, our whole family is "diabetes dysfunctional" I'm afraid, with everyone ...including D-child's Mom & Pop ...just letting it "ride"! The "ME" generation at it's finest.
You know ... somedays you're better off just staying in bed! Today is one of those days!
Showing posts with label I hate diabetes. Show all posts
Showing posts with label I hate diabetes. Show all posts
Wednesday, May 4, 2011
Sunday, November 28, 2010
Home Again Home Again Jigity Jig
I don't know what day it is ..... I am in a BRAIN CLOUD! I know I picked up the Arkansas Gang on Thursday at the Grapes-O-Wrath Airlines in LAX ... God directed me to the Airport with visions of "light" telling me to count the minutes and in SEVEN I would be there! (AND I WAS THERE in SEVEN MINUTES!)
The son-in-law drove us back to PS ...all the while playing with his "droid", texting, talking and GPS'ing! I was very near having a stroke from the waves of fear and just clutching to my beloved Romeo for dear life! The D-child was OUT ... dead silent and I feared her BG was very lo ... but didn't want to voice any opinion or offend the family in anyway.
The following day, my mom called and said she needed me to take her to ER. (My mother NEVER asks me to take her ANYWHERE so I KNEW THIS WAS BAD) She didn't want to call 911 because she knows I know how to treat her diabetes and most ER folks really don't have a clue with Adult T-1's. I drove the 35 miles to her home ... deciding midway that I was going to bring her to Palm Springs Hospital* until the issue could be resolved. (I knew she was having a hyponatremic event which can only be resolved by hospitalization.)
* Mother didn't want to come to PS Hospital ....
Reader's Digest Version: I had my mom at THREE different hospitals within a 30 hour period (in addition to the Urgent Care I took her to to get a PRE-Admission to the hospital and the first liter of Potassium Chloride). The first Hospital (now remember, she already had been admitted via the UC doctor!) told me to take her to their ER 1st ...then they would admit her. That ER room filthy dirty, all kinds of hazardous waste on the floors, counters and BEDS!!! I gave the ER Doc the records and Admission slip ... she ALREADY HAD an IV in and ready to go ... they then gave her another liter of Potassium Chloride ... and proceeded to start re-doing all of the tests she had JUST HAD at the UC (their affiliate!) I had to go to the Ladies room and when I returned to my Mom ...she was just finishing a HUGE hamburger that a nurse had given her and told her she MUST finish! OMG .... within 10 minutes her BG was 497 and I was freaking out! They refused to allow me to give her a correcting dose of insulin and my mom starting fading in and out of consciousness .... we were in that ER for about 2 hours, I think ...the whole thing is a blurr to me now ... all I remember is after the third time my mom slipped under ... I asked them to remove the IV so I could take her to Loma Linda Hospital (and also give her insulin to bring down the BG). That's when the FIGHT STARTED ... I know my rights and had her ready to go in about 15 minutes ... as I was signing all the medical release info, SOME CONFUSED NURSE HANDED MY TWO PILLS and before I could stop her ...down the hatch they went! The nurse had given her the MEDS for the WOMAN in the bed NEXT to my MOM! It was some kind of anti-biotic and they assured me that it would cause no harm ... and wrote the name of it on the records I was taking!!! CAN YOU BELIEVE IT?????????
Now ...I get mother in the car, it is pouring rain and I covered her with my London Fog Rain Coat and I, of course am soaked! (That's ok ... I can take being cold .. mother can't!) I call ahead to Loma Linda and get Mom Pre-admitted ...once again! Groovy! No more problems!
WRONG WRONG WRONG ... we get to Loma Linda ER WITH the Pre-Admin Info and just as they start to take Mother ....the admission room is flooded with cops, CHP officers and at least three hand-cuffed men walking and three or four more men bloodied and hand-cuffed to gurneys ...GUNS DRAWN and SHOTGUNS at READY! We were the only people in that admission area and a CHP Officer took us to a holding room and said they'd be back for Mother once they cleared the admission area of the gun-shot-victims!!
I kept checking Mom's BG ...I knew she was still in fading in and out and I really didn't know what to do, other than pray for her safety! ..... I guess I don't need to tell you that they FORGOT ABOUT US! At 4:30 AM ...in tears ... I went to the admissions desk and asked how much longer before my Mom was admitted ... horrified, the ER Nurse got my Mom into a "room" (if you can call a broom closet a room) and said the Doctor would need to see her before they sent her upstairs (to start treatment). At 5:45 am, this PISSED OFF, TIRED daughter (me) lifted my mom into a wheel chair and proceed to get the HECK out of there! Of course, NOW they tell me I'm risking her life if I remove her from THEIR care (WHAT CARE? they had done nothing and she was NOW having chest pains!)
I don't know how I did it ...but I got her back to Palm Springs (where I should have come in the FIRST PLACE) and they proceeded to stabilize her electrolytes and potassium levels. At 3pm they assured me she was stable, didn't need to be admitted , and to take her home and keep an eye on her BG for the next 24 hours .... HOORAY ...I can finally sleep!
At our Condo ...I make Mother comfortable .... and fix my darling hubby something to eat, walk my dogs and just do GENERAL stuff to get ready for the evening. At EXACTLY 5:15 pm I notice my mom is unconscious once again, I check her temp and it's 102.7 ...OMG OMG OMG! I get as much covering off her as I dare ...and her temp drops to 101.5 but she is shaking uncontrollably ... back to PS ER!!!!! At this point I'm running on adrenalin ONLY ... but the Doc at PS ER had me bring her directly to HIM, and bless his heart, he realized that the PILLS given by the 1st ER needed to be flushed from her system as well as keeping keeping her electrolytes in balance while her blood was flushed. The rest of the night is blurry ...all I know is that they put mother in the VIP ER Room ... a place they reserve for celebrities and presidents, where every piece of equipment you could ever need is IN THE ROOM .... he did EVERYTHING except a spinal tap to make sure that nothing was missed this time ...and that we were truly dealing with hyponatremia! After about 6 liters of something (along with the tests) my mom was her old self again by 9 am the next morning!
to be continued when my blood pressure goes down! ♥
The son-in-law drove us back to PS ...all the while playing with his "droid", texting, talking and GPS'ing! I was very near having a stroke from the waves of fear and just clutching to my beloved Romeo for dear life! The D-child was OUT ... dead silent and I feared her BG was very lo ... but didn't want to voice any opinion or offend the family in anyway.
The following day, my mom called and said she needed me to take her to ER. (My mother NEVER asks me to take her ANYWHERE so I KNEW THIS WAS BAD) She didn't want to call 911 because she knows I know how to treat her diabetes and most ER folks really don't have a clue with Adult T-1's. I drove the 35 miles to her home ... deciding midway that I was going to bring her to Palm Springs Hospital* until the issue could be resolved. (I knew she was having a hyponatremic event which can only be resolved by hospitalization.)
* Mother didn't want to come to PS Hospital ....
Reader's Digest Version: I had my mom at THREE different hospitals within a 30 hour period (in addition to the Urgent Care I took her to to get a PRE-Admission to the hospital and the first liter of Potassium Chloride). The first Hospital (now remember, she already had been admitted via the UC doctor!) told me to take her to their ER 1st ...then they would admit her. That ER room filthy dirty, all kinds of hazardous waste on the floors, counters and BEDS!!! I gave the ER Doc the records and Admission slip ... she ALREADY HAD an IV in and ready to go ... they then gave her another liter of Potassium Chloride ... and proceeded to start re-doing all of the tests she had JUST HAD at the UC (their affiliate!) I had to go to the Ladies room and when I returned to my Mom ...she was just finishing a HUGE hamburger that a nurse had given her and told her she MUST finish! OMG .... within 10 minutes her BG was 497 and I was freaking out! They refused to allow me to give her a correcting dose of insulin and my mom starting fading in and out of consciousness .... we were in that ER for about 2 hours, I think ...the whole thing is a blurr to me now ... all I remember is after the third time my mom slipped under ... I asked them to remove the IV so I could take her to Loma Linda Hospital (and also give her insulin to bring down the BG). That's when the FIGHT STARTED ... I know my rights and had her ready to go in about 15 minutes ... as I was signing all the medical release info, SOME CONFUSED NURSE HANDED MY TWO PILLS and before I could stop her ...down the hatch they went! The nurse had given her the MEDS for the WOMAN in the bed NEXT to my MOM! It was some kind of anti-biotic and they assured me that it would cause no harm ... and wrote the name of it on the records I was taking!!! CAN YOU BELIEVE IT?????????
Now ...I get mother in the car, it is pouring rain and I covered her with my London Fog Rain Coat and I, of course am soaked! (That's ok ... I can take being cold .. mother can't!) I call ahead to Loma Linda and get Mom Pre-admitted ...once again! Groovy! No more problems!
WRONG WRONG WRONG ... we get to Loma Linda ER WITH the Pre-Admin Info and just as they start to take Mother ....the admission room is flooded with cops, CHP officers and at least three hand-cuffed men walking and three or four more men bloodied and hand-cuffed to gurneys ...GUNS DRAWN and SHOTGUNS at READY! We were the only people in that admission area and a CHP Officer took us to a holding room and said they'd be back for Mother once they cleared the admission area of the gun-shot-victims!!
I kept checking Mom's BG ...I knew she was still in fading in and out and I really didn't know what to do, other than pray for her safety! ..... I guess I don't need to tell you that they FORGOT ABOUT US! At 4:30 AM ...in tears ... I went to the admissions desk and asked how much longer before my Mom was admitted ... horrified, the ER Nurse got my Mom into a "room" (if you can call a broom closet a room) and said the Doctor would need to see her before they sent her upstairs (to start treatment). At 5:45 am, this PISSED OFF, TIRED daughter (me) lifted my mom into a wheel chair and proceed to get the HECK out of there! Of course, NOW they tell me I'm risking her life if I remove her from THEIR care (WHAT CARE? they had done nothing and she was NOW having chest pains!)
I don't know how I did it ...but I got her back to Palm Springs (where I should have come in the FIRST PLACE) and they proceeded to stabilize her electrolytes and potassium levels. At 3pm they assured me she was stable, didn't need to be admitted , and to take her home and keep an eye on her BG for the next 24 hours .... HOORAY ...I can finally sleep!
At our Condo ...I make Mother comfortable .... and fix my darling hubby something to eat, walk my dogs and just do GENERAL stuff to get ready for the evening. At EXACTLY 5:15 pm I notice my mom is unconscious once again, I check her temp and it's 102.7 ...OMG OMG OMG! I get as much covering off her as I dare ...and her temp drops to 101.5 but she is shaking uncontrollably ... back to PS ER!!!!! At this point I'm running on adrenalin ONLY ... but the Doc at PS ER had me bring her directly to HIM, and bless his heart, he realized that the PILLS given by the 1st ER needed to be flushed from her system as well as keeping keeping her electrolytes in balance while her blood was flushed. The rest of the night is blurry ...all I know is that they put mother in the VIP ER Room ... a place they reserve for celebrities and presidents, where every piece of equipment you could ever need is IN THE ROOM .... he did EVERYTHING except a spinal tap to make sure that nothing was missed this time ...and that we were truly dealing with hyponatremia! After about 6 liters of something (along with the tests) my mom was her old self again by 9 am the next morning!
to be continued when my blood pressure goes down! ♥
Sunday, November 7, 2010
Chasing those mid-day lows ....
11-4-2010
wake-up........................291
wake-up........................291
12:45p.............................52
4:15p.............................389
5:50p.............................231
6:45p.............................121
7:10p.............................152
11:30p...........................235
11-5-2010
wake-up 9a....................216
11-5-2010
wake-up 9a....................216
10:30a............................205
12:50p.............................47
6:00p.............................173
7:45p..............................69
8:45p...........................127
11-6-2010
Wake-up 7:50a..............281
10:30a............................223
12:40p.............................57
1:00p...............................78
3:30p..............................172
9:30p...............................77
11-7-2010
11-7-2010
Wake-up 8:45a..............281
12:30p............................114
1:00p...............................48
before lunch reading
Amy is going to email or "text" (that's the latest thing, I guess) their Endo today and ask about REVERSING the doses of Levimir ... Instead of giving 9 units AM and 3 units at bedtime, give 3u AM and 9u bedtime. Maybe stop the morning HIGHS and mid-day LOWS ...
It's certainly not easy being a vital organ! She is in month NINE of being Ashlee's Pancreas ... and I know how frustrating it is for her!
I know she can do it! She is really quite a clever girl! Our little Amy-Poopski isn't so little anymore! Wish I could take this burden for her!
Amy ..age16Catalina Island
didn't want me to take this photo!
Isn't she cute!
Saturday, November 6, 2010
LET'S GET OUT A PAD AND PEN !!!!!
After reading Meri's post about her son's autoimmune skin and such disorders (all caused by EVIL D) and Sweet Joe's Christmas Wish ... I got MAD .... I don't mean angry or upset ... anyone who knows me, knows I don't ever use bad language, but I started last night! Circling my condo thinking and cursing OUT-LOUD !! Only the pets heard, thank goodness! but EVEN they were scared of me!☺
THIS IS A CALL TO ARMS D-BLOGGER(s) : here's what I'm going to do: type out a "sample letter" to send / give to all my friends and neighbors to HAND-WRITE out a personal letter to their district Congress Person (Mary Bono-Mack for me).
THIS IS A CALL TO ARMS D-BLOGGER(s) : here's what I'm going to do: type out a "sample letter" to send / give to all my friends and neighbors to HAND-WRITE out a personal letter to their district Congress Person (Mary Bono-Mack for me).
I am not trying to point any fingers here .... but some Endocrinologists are jaded about diabetes and ALL the little (I say jokingly) disorders that go with it! SOMETHING IS REALLY WRONG HERE .. in my case, my D-Grandchild's Endo says he doesn't Rx RESCUE KITS !!!! F-Him! (Thank you, Reyna!)It's not our baby's fault that his brain is T2 wired (less than 2% of his patients are KIDS w/T1). Small town mentally, I guess! My Mom's Endo pooh-pooh's her yearly 'bouts of hyponatremia! Every D-Care Person knows what I mean, knows the frustration of doctor(s) not ordering EVERY test available for [whatever] symptom is presented. WE NEED THE HEALTH CARE SYSTEM TO BACK US UP, REGARDLESS OF THE ADDED COST TO INSURANCE COMPANIES OR STATE-AID AGENCIES OR PAPER WORK COSTS!! That's right, some doctors actually advise the patient or parent that the added cost [to his/her] office personnel to do all the paperwork required by most all insurance companies and HMO's, etc. is just too excessive!
We need to flood our Representatives' Office with {nice} DEMANDS for better research and a CURE. Believe me, the more letters they receive the higher their priority will be in Washington when approached by Lobbyists for Insurance and Drug Companies ... believe me, WE CAN MAKE A DIFFERENCE! I WILL POST A COPY OF MY SAMPLE LETTER WHEN ITS DONE ... MAYBE ANY OF YOU WHO SEE THIS BLOG WILL DO THE SAME.
Letters that are "hand-written" definitely receive greater weight than letters that appear to be "form" or "bulk" mailing !!! I know this from FIRST HAND experience!
We need to flood our Representatives' Office with {nice} DEMANDS for better research and a CURE. Believe me, the more letters they receive the higher their priority will be in Washington when approached by Lobbyists for Insurance and Drug Companies ... believe me, WE CAN MAKE A DIFFERENCE! I WILL POST A COPY OF MY SAMPLE LETTER WHEN ITS DONE ... MAYBE ANY OF YOU WHO SEE THIS BLOG WILL DO THE SAME.
Letters that are "hand-written" definitely receive greater weight than letters that appear to be "form" or "bulk" mailing !!! I know this from FIRST HAND experience!
It's the least we can do for National Diabetes Month!
Thursday, November 4, 2010
Wednesday 11-3-2010
Wake-up 9:00a.............192
12:30p............................302
2:20p...............................66
3:15p...............................132
5:20p...............................268
8:30p...............................238
no correction at Bedtime...just 3 u of Levimir
no correction at Bedtime...just 3 u of Levimir
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thursday 11-04-2010
Wake-up..............291
9 u Levimir & 2u Humalog
**IMO should have received correction @
**IMO should have received correction @
bedtime 11-3-2010
but I'm not the Mom!
PS: Ashlee has been fighting some "bug" past day or so
and we all know how that can effect the BG!
Did I say I HATE diabetes?
PS: Ashlee has been fighting some "bug" past day or so
and we all know how that can effect the BG!
Did I say I HATE diabetes?
Wednesday, November 3, 2010
Chasing numbers ...hmmmmmmmmmmmmm
November 1st
Wake-up ........ 172
10:15a ....... 146
1:45p ........ 55
5:30p ...... 206
8:05p ....... 101
10:00p ....... 104
11-2-2010
Wake-up ........ 163
12:00p ........... 60
12:45p ........... 127
3:45p ............. 230
5:15p ............. 242
6:00p ............ 144
7:30p ............. * 77
* Not a good "bedtime" #
~~~~~~~~~~~~~~~~~~~
No Intake or bolus information
Morning receives 9 u Levimir
Bedtime receives 3 u Levimir
Ashlee uses the Insulin pens
Her regular is Humalog
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Myrnx has given up on the Pump altogether! Her Endo (we saw yesterday) said some older T1's just aren't able to deal with technology
Friday, September 24, 2010
what to do...what to do ? ? ?
The kids were here from Arkansas for Ryan and Heidei's wedding! Always a treat to get to be with them all. Ashlee (T1 grandchild) is such a treasure and although I shouldn't have favorites, she certainly is the one MOST on my mind, heart and prayers!
I know (from my Mom's T1) that any kind of stress or change can effect the BG, so I shouldn't be concerned with Ashlee's numbers ...BUT I AM! Maybe its "growth spurt" or the trip stress, but that's child's' #'s were all OVER the board. She really could benefit from the pump, but her Endo won't consider Rx'ing it without documented brittle readings. Amy, bless her heart, doesn't log or measure anything. (I'd be crazy with out the numbers in front of me.) She doesn't remember when or if she's given a correction or what Ashlee ate, etc. etc. etc. SHE is just to busy with everything else, so what to do??? She'll never get a pump without logs for Endo to review ... they are coming back next month for a business trip, we'll have them 14 days. I am praying that Ashlee will come with us. I know Amy may change her thinking if we can show an improvement in Ashlee's numbers ... PRAY FOR ME ...
Sunday, August 29, 2010
PUMP-HER-UP
Myrnx pump has been OFFICIALLY turned on for three days. I can hear the difference in her voice already. She says she is almost able to sleep through the night, only getting up twice to pee! I just know this is the answer to all of her "brittle" problems. Wish they'd have "pumped-her-up" a few years ago! Maybe she wouldn't have had the heart attack had she been on the PUMP.
We'll never be able to change her personality ... she will always be that "TYPE A", compulsive do-er! God bless her for all she does for everyone in her life, including ME. I just want to become a blessing in her life, help her to overcome the fear of the pump, etc., etc.
We'll never be able to change her personality ... she will always be that "TYPE A", compulsive do-er! God bless her for all she does for everyone in her life, including ME. I just want to become a blessing in her life, help her to overcome the fear of the pump, etc., etc.
Monday, July 26, 2010
The BODY Electric!
This post is for my Grand-People-AT-Large! We are a Gaggle of Grandparents! (That's what happens when you have multiple marriages and divorces! ☺) We are truly lucky as our "Gaggle" loves one another and we ARE one big, very happy family ... We embrace the children and grandchildren that we all love so deeply! THAT BEING SAID ....
Some of the "gaggle" are very skeptical of the BANT Theory and the daily exposure to EMF's, the damage it does to our health and long term risks. Well, I have finally found a way to SHOW the "gaggle" what we (Amy, Myrnx and me) are fighting! I'm so exited and it was right in front of my face all these months ...
If you take one of those batteries that have the "testing dots" on them ...(you know, the ones' with a green dot for each thumb), your "body electric" conducts its own current thru the battery, as the conduit and connects the "green line" if the battery is good.
Its NOT a far stretch to believe that some of the bad "currents" in our environment have effects on our health ... could micro-waves cause diabetes? How about radio waves (got Sirius?) or that wonderful warm electric blanket? I just don't know, but I actually know TWO women who have BOTH had tumors on their facial nerve, directly behind the ear, one's was cancerous the other not. Its a fact that brain tumors are on the rise and I believe, along with folks smarter than me, that its a direct result of cell phone use!
Amy has seen REAL positive BG reading in the past few weeks of "experimenting" with the BANT Practitioners' methods! She has now reduced Ashlee's insulin from 1 unit per 15 carbs to 1 unit per 25 carbs! AND she is still slightly low! I am thrilled! and so very proud of her for doing anything and everything to MOVE diabetes out of Ashlee's life!
Diabetes is very SNEEKY ... and it may just be laying-low to give us some false hope and security. Doesn't matter, we will continue to use any tools available to beat this thing! The ONLY thing that will WORK FOR EVERYONE is a CURE. Let's pray they find one but until they do ... get out the tin-foil! ha ha ha ☺
Monday, July 12, 2010
"D" doesn't pay rent
You know, DIABETES moved into our homes, lives, hearts and heads. First, my Mother some 20 years ago ... and now our beloved Ashlee, five months ago. Don't get me wrong, we are usually very welcoming of new ideas and guests .... but if "D" wants to live here ... It MUST pay rent!
Myrnx is on her test run with the PUMP !!! Using just saline for the doses. She doing OK with the exception of the first site change .... after two hours she was in tears and told me she would NEVER be able to get it right! Well, of course, it all worked out and I am very excited to be taking her into the Diabetes Clinic on Wednesday to "fire-that-baby-up" !!!
I pray this Pump is the solution to her needs .... she is really wearing down and I love her so! I want her with me for always! Next step is to get Ashlee PUMPED-UP, too! As difficult as it is to get started, the long range benefits outweigh the trial and errors and haggling with the insurance! I also asked Amy to leave Ashlee with us for a few months ... to give her (Amy) a break and to show Ashlee how SPECIAL she is. I know we could pull it off ... especially now that I've been reading all these D-Mom Blogs! What a blessing these girls have been! AND Inspirational!
Myrnx is on her test run with the PUMP !!! Using just saline for the doses. She doing OK with the exception of the first site change .... after two hours she was in tears and told me she would NEVER be able to get it right! Well, of course, it all worked out and I am very excited to be taking her into the Diabetes Clinic on Wednesday to "fire-that-baby-up" !!!
I pray this Pump is the solution to her needs .... she is really wearing down and I love her so! I want her with me for always! Next step is to get Ashlee PUMPED-UP, too! As difficult as it is to get started, the long range benefits outweigh the trial and errors and haggling with the insurance! I also asked Amy to leave Ashlee with us for a few months ... to give her (Amy) a break and to show Ashlee how SPECIAL she is. I know we could pull it off ... especially now that I've been reading all these D-Mom Blogs! What a blessing these girls have been! AND Inspirational!
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